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Lupus
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Posted on Mon, Feb 07, 2005 03:44

Does anyone have anything that works for them in combating Lupus attacks?
I know that when I follow the Blood-Type diet, it works for me. But then again, things work for awhile, until you have to try something else again, because Lupus keeps rearing it's ugly head even more after awhile of almost serenity.
Grant it, most days I have some degree of pain, and it is manageable, but then there are some days that I am just flat out in the bed for awhile. I try not to take anything except pain relievers to ride it out. Just wondering if anyone else out there is going through this too, and what works for you. Thanks. Heidi.



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Posted on Tue, Dec 04, 2007 13:41

I would have to comment that during a flair up the body is in a serious state of inflamation,as it is an auto immune attack,and anything one can do to decrease this would be helpful during and after.



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Posted on Wed, Aug 01, 2007 14:26

get yourself a electronic muscle stimulator, like a tens machine. We have one called Leva, but it is not made anymore, my friend Rick treated a person with Lupus with the Leva, she had bumps all over and with the use of the Leva, bumps were gone immediately. I have used it for arthritis, and a shoulder injury, it completely cures it for many months. Other suggestion try on-line natural remedies. We just used apple cider Vinegar for Gout, and it works. Hope this helps, Karen



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Posted on Thu, Feb 23, 2006 20:24

If you will contact me directly, I can provide valuable information...Unfortunately, not everyone has the butterfly over the nose...Lupus can be very hard to diagnose and RA can play an active role in Lupus!!!

Faith, prayer and determination!!!



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Posted on Tue, Feb 21, 2006 03:31

Hi... You may wish to try this - mineral & mangosteen. In the nutrition programs it cover what we needs daily. I had search thru some internet website about mangosteens. I found that it is indeed a powerful anti-oxidant we needs in our body. It could help to prevent or reduces certain bacteria infections. Only if you are willing to know more.. Thanks.take care



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Posted on Thu, Sep 29, 2005 13:06

I did read that diet and allergies can play a part for SOME Auto immune dieases, howveer everyone is different and some diets work for some while others worsen. But that can be all theory too, i only know through articles that others have written which is why I have such an interest in learning more facts.



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Posted on Thu, Sep 29, 2005 11:51


ciaobaby7 write:
I'm curious as to how the two get mixed up. Aren't there two seperate tests for both Lupus and RA? I'm very interested to know because Lupud does run in my family and I get tested often.

It is not unusual that the two can can be mixed up when presenting yourself to the Doc's with your health ailments (symptoms) as

Lupus(SLE an Autoimmune disorder)and RA share some similiarities which can mimic the same symptoms. Such as fever,anorexia,maliase,wt loss and joint pain,vasculitis ect. Though Lupus has many additional symptoms.

There are many Diagnostic tests that can determine which one it is. Such as the basic systemic manifestations wether progessive or insidious. With RA one will exhibit a postive RA factor elevated ESR increased Antinuclear Antibody Titer(ANA) A synovial fluid analysis showing a decreased fluid viscosity increased protein CBC...Anemia mild leokocytes and X-ray change to name a few.

Lupus wether it is SLE or DLE very HOWEVER they too show moderate to severe anemia. Leukopenia possible thrombocytopenia mild proteinuria and hematuria decreased deformities(swan neck,ulner deviation morning stiffness,inflammation ect...further diagnostic test should be to test the renal function such as BUN,Creatinine and possibly a kidney biopsy. It is imperrative that each person is tested to see if there is any heart,lung,and renal involment...The Autoimmune disorder is thought to be caused by viral infection or genetic endocrine factors.

Wow to much to type on my day off however can further give explanation if so requested.

  


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Posted on Thu, Sep 29, 2005 11:31

I agree Goodlife. Any type of allergy that triggers the immune system could develop into Lupus (or so I think).



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Posted on Thu, Sep 29, 2005 09:03

I have been plagued by a whole host of autoimmune disorders since I was a child.

When I started the "blood type" diet (I'm a O+ and gave up wheat, dairy, eggs, legumes, etc., and live like a cavewoman on meat, fruits, vegetables and rice), nearly all my autoimmune symptoms disappeared in a matter of weeks (or months in some cases).

I think food allergies play into Lupus and autoimmune problems in general. I have no medical/scientific proof of this, just a lot of anectotal evidence, and personal experience.



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Posted on Tue, Sep 27, 2005 17:53

I'm curious as to how the two get mixed up. Aren't there two seperate tests for both Lupus and RA? I'm very interested to know because Lupud does run in my family and I get tested often.



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Posted on Mon, Sep 05, 2005 15:17

Sometimes Lupus misdiagnosed as R.A. and vice versa...make sure so you know you are getting proper treatment and have a good specialist



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Posted on Sat, Apr 16, 2005 23:30

Look for something you are alergic too that causes your immune system to go into overdrive. I had a lupus attack once that was triggered by dust, sheetrock, new paint, carpets, from remodeling.

Anything could be the trigger.

ww



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Posted on Fri, Apr 01, 2005 09:22

To answer your ? jenaykids.

your butterfly rash is a chronic skin disorder of a unknown cause however is referred to DLE ( Discoid lupus erythematosus. This condition may last several years with intermittent improvement and worsening. DLE may occur on its own or it may be associated with systemic lupus erythmatosus (SLE). or a more serious disorder. People with DLE alone have the rash but remain otherwise well those with generalized SLE have additional symptoms such as painful joints. DLE is more common in in women between the ages of 30 and 40.

What should be done? You should consult your physician to determine whether your rash is due to DLE or SLE....I can provide additional info if you like...just let me know



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Posted on Tue, Mar 29, 2005 22:02

I have been pregnant 5 times and each time my face broke out with this butterfly rash. after i lost one of my babys at 4 month of pregnancy I had fevers for about 8 month unknown to the doctors and they sent me to a disease person and I was pregnant again and couldnt go for the tests he wanted me to. the fevers stoped after the fourth month and now my son is 3 month and the rash has not gone away yet do you guys think its lupus?

  


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Posted on Thu, Mar 17, 2005 16:47

Very thorough, indpls... took the words right out of my mouth... and Lil too!! Many of our modern society's diseases are caused by a lack of a healthy lifestyle... because of a lack often of awareness unfortunately. Our fruits and vegetables are missing so many basic nutrients compared to 40 yrs ago, it's frightening. And our food is laden with chemicals, and our environment, with all kinds of pollutants. That is why if you truly value your health, it is important to get the proper information and to get on a supplementation program. Even the FDA now recommends a daily multi-vitamine and mineral formula.

  


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Posted on Sun, Mar 13, 2005 22:17

Hi. Thanks for the latest entries on Lupus. I hadn't been able to check for awhile. I will definitely check out the website on alternative medicines. But I do need to comment too, that for some strange reason, I can have a lupus attack that lasts for a few days, and will even keep me in bed during that time, but I seem to throw off colds and flu rather rapidly. Interesting--Very interesting. I wonder if others with Lupus experience that. Something to ponder. I've met so many wonderful people through these forums, and we really do help each other. Glad we all stick together.
Heidi.



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Posted on Sat, Mar 12, 2005 18:47

Hi Larken35! I believe in alternative medicine wholeheartedly you ought to check into it . Go to this site and check it out a5curezone.com, there is so much information on how to cleanse your body to heal all deseases, we are what we eat I do believe and it is extremely difficult to change eating habits but it can be done so check this site it is testimonies of people that help each other and it is free to be a member hope this helps girl have a nice one!

  


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Posted on Sat, Mar 12, 2005 12:03

Systemic Lupus Erythematosus

Also indexed as: Discoid Lupus Erythematosus (DLE), DLE, Lupus, SLE, SLE

Introduction
Checklist
Symptoms
Treatments
Dietary changes
Lifestyle changes
Supplements
Herbs
References

Systemic lupus erythematosus (SLE) is an autoimmune illness that causes a characteristic butterfly-shaped rash on the face accompanied by inflammation of connective tissue, particularly joints, throughout the body. In autoimmune diseases, the immune system attacks the body instead of protecting it. Kidney, lung, and vascular damage are potential problems resulting from SLE.

The cause of SLE is unknown, though 90% of cases occur in women of childbearing age. Several drugs, such as procainamide, hydralazine, methyldopa, and chlorpromazine, may create SLE-like symptoms. Environmental pollution and industrial emissions were associated with an increased risk of SLE in

one study.
1 In one reported case, zinc supplementation appears to have aggravated drug-induced SLE.
2 Ultraviolet radiation from sun exposure is a commonly recognized trigger of the skin manifestations of lupus.
3 Some environmental chemicals such as hydrazine
4 and food dyes such as tartrazine
5 may be environmental triggers of SLE in susceptible people.

Risk factors include a family history of SLE, other collagen diseases or asthma,
6 menstrual irregularity,
7 beginning menstruation at age 15 or later,
8 exposure to toxic chemicals,
9 and low blood levels of antioxidant nutrients, such as vitamin A and vitamin E, or beta-carotene.
10 Free radicals are thought to promote SLE.
11Discoid lupus erythematosus (DLE) is a milder form of lupus that affects the skin. Like SLE, it?s not known what causes DLE, though sun exposure may trigger the first outbreak. DLE is most common among women in their thirties.

Checklist for Systemic Lupus Erythematosus

Rating Nutritional Supplements Herbs
DHEA

Fish oil (EPA/DHA)
Tripterygium wilfordii

Pantothe...



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Posted on Fri, Feb 11, 2005 12:03

please email me, I can give you lots of information



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Posted on Fri, Feb 11, 2005 10:01

Wonderfull!!! Thanks so much for the advice. I have added more eggs and pineapple into my diet, and have stayed away from red meat as much as possible. It does make some of a difference. Although lately, I've been eating more hamburgers again. Noticed a few more attacks too lately. Thanks for tellling me other things to try. Finding an oriental doctor would really be wort it to try. Blessings and take care,
Heidi.



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