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Posted on Wed, Sep 24, 2008 08:03

My Dear daughter Claire in the UK who has severe health problems, ie 7 huge non cancerous tumours for a liver and lymph glands that have stopped working, has learned today that Charlie, my G/son , sitting on my knee, who was a child model and is labelled 'genius level'. but who over the last 6 months, his behaviour has become intolerable, has Aspergers Syndrome, she learnt this this morning, and by pure coincidence i rang her as she arrived back home. She has been thro so much this past 4 years, and has always soldiered on, but as she spoke to me , choking back the tears, as i am now, The bottom just dropped out of her world, Do any of you out there have any experience of this, i would appreciate any input. I'm trawling the web looking for helpful stuff, but any personal dealings would be very much appreciated. I feel so helpless as a father, that all this should be heaped on such a sweet girl is heart rending. Rob


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shazbot82
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Posted on Wed, Oct 01, 2008 19:17

Rob,,Ive decided to remove my more personal information off this blog. I do hope you found some solace and comfort in my contributions. I see that you are feeling better and that is good. Please feel free to contact me if you would like to chat or just co-mizerate.


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Posted on Mon, Sep 29, 2008 04:57

Hi Shaz, Thx for your very personal info, ive been finding out similar things, Charlie has been recognized as having genius level, also was a photographic model, has the most amazing mind, but is very forward with adults, not at all shy , just think kids his age are stupid. Its just going to be hard over the next few school yrs. Kitten also thx, Im much more relaxed about his condition now I know more about it. Again thx to everyone who has contacted or written to me Rob


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Posted on Fri, Sep 26, 2008 13:06

I truly appreciate all you great friends out there who have bothered to write or ring me , its very uplifting and i'll pass all the good wishes to Claire, She's always been there for others in the past, She has a heart of gold and would gladly give her last penny or crust of bread to those less fortunately, you couldn't meet a more selfless person. But it appears that Charlie maybe OK once thro his early school yrs, he speaks, reasons and talks like a 40 yo, but in a 4 yo's body, and when with other bright and interesting people he's a different child, a Little professor as Dr. Asperger calls these kids. But when your separated by thousands of miles and know that you can really only give a hug if you were there, it tends to hurt. Especially as my life has gone from rock bottom to the crest of a wave. Thx again to you all, its wonderful to have caring friends out there. Rob


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crazybeautiful2000
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Posted on Fri, Sep 26, 2008 04:15

I'm so sorry to hear of your news. Hopefully your grandson will do well in his school. And, I hope your daughter can some relief from her troubles too. My thoughts and prayers are with you and your family.


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Posted on Thu, Sep 25, 2008 15:01

Thank you all for your kindness and advice. Im sure having spoken to my sister who knows some eminent professors who are Aspergers, that we can work thro this, after all we only discovered this yesterday. They live in the UK not here with me. But the school Charlie is about to start has already Aspergers children and understands their needs. My daughter, Claire is not at all well, her condition causes severe tiredness and many unpleasant side affects, so having to deal with a super bright kid who doesn't understand right from wrong is taking a terrible toll, but hopefully , now we know the cause the correct course of 'treatment' can be applied. Thx again to you all.


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Posted on Thu, Sep 25, 2008 12:21

I have two beautiful and accomplished daughters and know the feeling of helplessness when they are in pain. Sometimes all we can do is hug them and let them know we love them. I have seen Jenny McCarthy on TV several times. Her son was diagnosed with Autism and she has become an advocate. Her son has been cured. I don't know the entire story but do recall that part of the solution was dietary. She has a new book out called Mother Warriors.... it might help.


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billzeke
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Posted on Thu, Sep 25, 2008 06:35

I don't know you and know very little about the illnesses you describe. It's very difficult to read about such a sad tale especially when it involves children. I can't begin to imagine how you must feel. I just want to offer my very best wishes to you and your family....Bill


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READY4UNOW
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Posted on Thu, Sep 25, 2008 04:56

Hi loneranger, I am so sorry to hear about Charlie, please tell Claire my thoughts are with her and Charlie. Jenny McCarthy has done some amazing work with autism and Asperger's is a lesser form of the disease as well. She believes there's a link between immunization and autism. She has done much work through diet, etc. and has had good results. I posted a link for you on IM as MM doesn't allow it. Jenny's book "Louder Than Words" - A Mother's Journey in Healing Autism, is all about her experience with her son. My thoughts are with you also.


What is love? Love is feeling comfortable and safe with someone but still getting weak knees when they walk into a room and smile at you. :)

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Queenofyourdreams
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Posted on Thu, Sep 25, 2008 03:56

Quoting loneranger06: My Dear daughter Claire in the UK who has severe health problems, ie 7 huge non cancerous tumours for a liver and lymph glands that have stopped working, has learned today that Charlie, my G/son , sitting on my knee, who was a child model and is labelled 'genius level'. but who over the last 6 months, his behaviour has become intolerable, has Aspergers Syndrome, she learnt this this morning, and by pure coincidence i rang her as she arrived back home. She has been thro so much this past 4 years, and has always soldiered on, but as she spoke to me , choking back the tears, as i am now, The bottom just dropped out of her world, Do any of you out there have any experience of this, i would appreciate any input. I'm trawling the web looking for helpful stuff, but any personal dealings would be very much appreciated. I feel so helpless as a father, that all this should be heaped on such a sweet girl is heart rending. Rob

Rob, I am so sorry to hear this. I know how close you are to your family. I do not know much about Aspergers, but do know that many people have experienced it and live productive lives. In most cases it can be managed. You, and your family, are in my thoughts.

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People may not remember what you say or do, but they will remember how you made them feel.

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shazbot82
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Posted on Thu, Sep 25, 2008 03:35

Rob...while this is a huge deal,,she should know that people with this afflication can and do lead productive happy lives. I was involved in a 6 year long relationship with a man who had this. Yee, he was socially akward, but he was also mentally brillant and a pretty decent person. He makes a stellar living as one of Silicon Valleys leading computer scientisits. I hope that your daughter can find a support group and become aware of some of the people who have this. Its not the end of all hopes and dreams for her child. There wil be adjustments and hardships,,but there IS hope.


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Posted on Thu, Sep 25, 2008 02:03

So sorry to hear of your troubles Lone. I can't imagine how you must feel. As a daughter, I look to my Father for help and strength in times of need, as it seems your daughter does to you. Knowing that my Pa is there to comfort me in times of trouble helps me to face the trials and tribulations of life. I'm sure there are many here who will be ble to offer you help and advice. For my small part, my thoughts and prayers are with you, your daughter and your Grandson.


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