Just wanted to ask if anyone here has a family member, friend, etc who has been diagnosed with lyme disease from a tick-bite or if anyone here has been diagnosed with multiple sclerosis, ALS, cronic fatigue, or fibromyalgia? My daugher, now 18, was bit by a tick 5 years ago here in California. Only less than one year ago did a Dr. figure it out after literally seeing more than 100 Dr.s. Her quality of life is nil and competing in gymnastics, cheerleading, high school are all echoes from before she got sick. Lyme disease is not only the most political disease in the history of medicine it is also an epidemic that many people don't even realize because they are not telling us. My daughters plight through this most devestating, complex disease has been that of frequent icu admissions, endless Dr. appts., constant symptoms that affect every system in the body and even worse we have been mocked, shunned, ridiculed, told it is all in her head to go to a psychiatrist, that she is making it up, you can't imagine what lyme patients are treated like for just saying they have lyme. The medical community is divided into two--one side follows the 15 panel Dr.s who determine the treatment guidelines for lyme and say there is no such thing as "cronic" lyme (my daughter having it for 5 yrs is proof is does exist) and that it is easily treatable which it is one of the most difficult to treat. These same 15 panel Dr.s are making money privately by taking the live organisms and profiting from what they find under the microscope leaving the patients to suffer. Lyme patients are not only victimized once but twice because the insurance companies are capitalizing on the 15 panel Dr.s and only pays for 4 weeks of I.V. antibiotics and beyond that you have to pay out of pocket for your treatment. My daughter also having babesia, and bartonella (parasites from the tick) which is now threatening her life and the Dr. that took her on as a patient is only one of a handfull who even knows how to deal with these parasites, plans on my daughters treatment being 5 years minimum. The other side of the medical community are on the front lines trying to fight an uphill battle because Dr.s are in danger of losing their license to practice medicine if found out that they are treating these patients more than 4 weeks. There are too few Dr.s educated enough about this very complex disease and the testing for it only catches 1 out of 100 which means there are hundreds of thousands of people cronically ill and either misdiagnosed or undiagnosed because the tests are not sensitive enough.
It has been proven scientifically that lyme disease is the actual underlying cause of fibromyalgia, multiple sclerosis, ALS, cronic fatigue syndrome and more than 20 other autoimmine diseases. If anyone has been diagnosed with what I listed it is recommended to go see a Lyme literate Dr. to be tested for lyme. I am wondering if there is anyone here who wants to share information or looking for someone esle who understands what this disease does and maybe looking for some encouragment or support. And if anyone has questions as to resources for anything to do with these illnesses please ask and I or someone else may know. I have quite a lot of resources that I can share if needed. And for those who want to know a little more about it please visit the following website I made and go to the "more on lyme" tab to watch the compilation of videos I provided that will give you a good picture of how much of a threat lyme really is--it is in every State, except Hawaii and around the globe. In my state alone there are 9 different strains of lyme in the ticks right in our backyards, parks etc. Knowledge is power and protecting yourself and loved ones is important.....Also, ILADS is a great resource made up of Dr.s on the front lines fighting the battle of trying to educate Dr.s and so much more. The website is